While I was praying this morning I was thinking how thankful I was that Levi has been feeling so well. I know yes it is summer time and he usually does much better but with that to say I AM SO THANKFUL. We have a calendar that we keep track of how he is [...]
Categories: CF Awareness Month, Cystic Fibrosis (CF) | 
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We are taking Levi to the Mauli Ola Surf Event in Santa Monica today. I’m sure it will be a blast. I’ll post pictures and videos later. Check out this great organization.
Mauli Ola
here are the pictures. it was a fun day! Levi charged into the water but then once he got in he was not [...]
Categories: Cystic Fibrosis (CF), Firsts, Levi | 2 Comments »
I can only imagine what this poor mom is going through and that, I sometimes try not to do myself because it is so real to me and can hit so close to home but today I want to walk in her shoes and pray for her as I imagine walking in her shoes. She [...]
Categories: Cystic Fibrosis (CF), Prayer | 2 Comments »
Categories: Cystic Fibrosis (CF) | No Comments »
After Saturday I could not help but try to write a blog although trying to put into words all that I experienced, felt, embraced, released, and took in but I’m going to try. Saturday Jason and I had a fantastic opportunity to join some friends of ours the Rogers and walk in their CF walk [...]
Categories: CF Friends, Cystic Fibrosis (CF), God, Levi | No Comments »
WOW!! What a turnout. We were so blessed this weekend by all of you who came out and to all of your who supported the CF Foundation financially. We truly feel so blessed to have all of you in our lives. It was a fantastic day with wonderful weather. It is always so encouraging for [...]
Categories: Cystic Fibrosis (CF), Family, For The Love Of Levi, Great Strides | No Comments »
i find myself at night when levi isn’t feeling well and is coughing so much he can’t sleep counting the seconds. the seconds he isn’t coughing. i’ll find myself saying wow it has been 30 seconds since his last cough, 45 seconds in hopes that is the last one before he falls asleep and then [...]
Categories: Blogging, Cystic Fibrosis (CF), Uncategorized, under the weather | 4 Comments »
The ordering process of the shirts has been postponed a bit so the order will hopefully be placed in the next day or two so if anyone else has any last minute orders please let us know. We will be selling the For The Love of Levi t shirts for $15 dollars we will pay [...]
Categories: Blogging, Cystic Fibrosis (CF), For The Love Of Levi, Great Strides | No Comments »
On our way to the airport at 5:45am we accidently left the vest bag outside the car right next to our house. When we got to the airport I asked where the vest was and Jason basically with his facial expressions said UT OH!!! so right away we called my dad to see if he [...]
Categories: Blogging, Cystic Fibrosis (CF), Friends, Levi | No Comments »
today we took both of the boys in to see the doctor (i might add levi and tytus have 2 of the best doctors i have ever been around they really know their stuff and are great with kids and always go above and beyond for us and our boys) so we took them [...]
Categories: Children, Cystic Fibrosis (CF), Levi, Tytus | 2 Comments »
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