having a cfer vs having a non-cfer
guess im not sure the title of this post is really what im getting at but basically i feel so blessed to have had my little cfer as my first child. for many reasons here are just a few
we knew no different so treatments are not a burrden they are just apart of our day
medications are not any trouble just part of our day
germs well i learned how to keep my kids away from them the best way i can (without putting them in a bubble) we are careful but we want him to be a kid too.
he is tough and is and will be such a great big brother.
he has made me also appreaciate and not take for granted having another little boy who does not have cf
cf has taught me to hold on to my boys just a little tighter and hug them for just a few seconds longer and for that i’m so grateful.
some of the random little things that are so new to me that i deal with with tytus
i can feed him anything at ANYTIME (no enzymes needed)
i can take a sippy cup of milk and let him drink from it for a long time or even put it back in the fridge. that’s wierd to me i never did that with levi well first of all because he is always sucking down his milk but i couldnt keep it out because he would need enzymes to drink it.
i can drop his pasafire and just simply dust if off on my pants
probably still should wash it but awww who cares.
the one bad thing which i am totally trying to work on is my sympathy towards tytus when he is sick its not nearly at the level of concern than when levi is sick and its understandable but at the same time i think aww buddy you will be ok. so im trying to gain more compassion in that way.
i just feel so blessed and i know the lord would have prepared us if it was reversed and our little cfer was second but it is sure nice to have a different perspective on my second kid and being able to appreciate some things that im sure most moms and dads just dont even think about and rightfully so its not something you have to think about.
anyways kind of a random post and i hope i portrayed everything correctly.
i love my boys and am so blessed to be their mama.
to my friends who’s little cfers are their second or even third i just want you to know i feel you because i do think this way i can imagine all the stuff you had to adapt to and that must have been so much harder. PRAYING FOR YOU ALL.

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Kel – you are such a great mom to those boys! And Jason an amazing dad as well. I am so blessed by your strength and compassion and I know it has and will continue to have a long lasting affect on Levi & Tytus and they way they will live their lives!
thanks julie! also thanks for your comments on here it makes me keep writing because i know there are people reading and well now i realized i can reply to comments which is cool so im going to start doing that too. let me know if this notifies you that i left a message or not?
thanks
I love you babe!! You are a great mom and wife and I’m so glad that you get to be home with the boys. Keep up the great work!
I can really relate to this post. I always thought that having Sophie first helped me because it made me keep going after Jacob was diagnosed. I always wondered if I would just never left my house because I was to afraid of germs. It was hard when he was in the hospital because I would be away from her. Anyway, we deal with what we are given! I have also wondered when we do have a cure some day will we really just be able to stop all treatments? That would be so scary to do that to me. Does that make sense? We rely on these things to keep our boys alive and to just stop doing them seems crazy scary. Sorry for the ramble!!!
Hey Kel – It did not notify me. It would be cool if it did though